I don't want to hear about childhood cancer anymore!

September is childhood cancer awareness month. *blah blah blah*

I have been telling people about childhood cancer, and quite frankly I am sick of it. I am sick and tired of "childhood cancer awareness" month. I am so weary of thinking about childhood cancer. I just don't want to do it anymore: it is too depressing. I don't want to think of all the sweet children that are suffering and all the parents that are grieving. If I ignore it maybe it will go away. If I just pretend that children don't get cancer, perhaps Jimmy will grow his hair back, his vision will return and he wont have seizures or learning disabilities anymore. If I don't think about the little children dying perhaps they just won't die. It is just too ugly, depressing, and painful to think about, so I won't acknowledge it, and it won't exist.

Unfortunately, However much I may wish to ignore it, the reality is that children die from cancer. There are children dying right now. 3,000 children will die of cancer this year. Cancer is the #1 cause of death from disease in children in the U.S. Only 3% of cancer research money goes toward childhood cancers. Chemotherapy and radiation are far more damaging to developing little brains and bodies than it is to adults, but, ONLY ONE new cancer drug has been approved for pediatric use in the past 35 years!

Did I mention that September is childhood Cancer Awareness month?

September is Childhood Cancer Awareness Month

September is Childhood Cancer Awareness Month and September 12 is Childhood Cancer Awareness Day

Here are some things you can do this month (and ALL YEAR ROUND, for the most part!) to support Childhood Cancer Awareness. None of these things involves any financial burden of any kind (except for eating at Chili's ... but hey, ya gotta eat right??)

Tell everyone you know (and even those you don't know) how you, or someone you love, has been touched by childhood cancer.


Donate blood: givelife.org


Dine at Chili’s on September 28, 2009, when they will donate 100% of profits from restaurant sales to St. Jude Children’s Research Hospital: createapepper.com


WEAR GOLD FOR THE KIDS: cafepress.com/teamunite


Register to become a bone marrow donor: marrow.org


Offer to volunteer at a local childhood cancer center.


Join Team Unite to become part of a unified voice against childhood cancer: teamunite.net


Join People Against Childhood Cancer (PAC2) to learn of efforts being made around the country to find a cure, raise awareness, and lend support: curechildhoodcancer.ning.com


Let a family that's been touched by childhood cancer know you STILL CARE and haven't forgotten about their struggles.


Let a family of an angel know their child remains in your heart.


Sign the CURE CHILDHOOD CANCER petition (and ask your friends and family to sign, as well!): thepetitionsite.com/1/CureChildhoodCancer
Download a poster version of this list! http://teamunite.net/pdf/TeamUnite_SEPTEMBER.pdf

How is Jimmy doing?

It has been 4 years since my life changed. It has been 4 years and 4 days since Jimmy's brain tumor diagnosis, 4 years and 3 days since I sat on the floor and cried uncontrollably outside the ICU after Jimmy's first surgery when we were told Jimmy probably would not make it. It has been 4 years and one day since the doctors miraculously were able to remove all of Jimmy's brain tumor. I have lots of people ask me how he is doing. Jimmy is doing fine! he is mostly blind, half bald, has learning disabilities, and he has partial seizures almost daily. I'm sure many people would not think that that is fine, but to us it is part of our "new normal" life that began 4 years ago. Jimmy is fine, he is an alive, happy, energetic 8 year-old now. How could I ask for more than that? We adjust, and life goes on in our "new normal" way, we have learned not to take life for granted, little things don't matter, we treasure our time together a little more. It has been four years since our lives changed, and we're doing just fine.

Our healthcare system

With the recent debate about health care I thought I'd share a few of my experiences.

Health care in America vs health care in Canada:
We recently were in Canada on vacation when Jimmy started having facial seizures and paralysis on the right side of his face. He had three incidences in one day. His brain tumor was on the left side so this could be a tumor re-occurrence. We called his oncologist and we were told to take him to the E. R. and get an MRI. We went to the E.R. at B. C. Children's Hospital. (the first hospital E.R we went to told us that they do not treat children.) There were only a few other patients there so we received prompt medical attention. After 2 hours of giving 4 different people his complete medical history we finally saw a the doctor, It turns out they had to wait for the Dr. to get there, because of a shortage of Dr. shortae in Canada there was no Dr. in the E.R.! All the doctor did was tell us that they could not do an MRI for us because "We only do those when they are medically necessary" Hmmmm..... Just what do they consider "medically necessary"? and it would take at least 2 weeks to get an "emergency CT scan" even though we told them Jimmy shouldn't have CT scans because of all the radiation he has received and brain tumors do not show up very well on CT scans. The doctor advised us to go back to the US to get a scan. We arrived home at about 7:30 pm and received an MRI the next day. (it was "stable" no tumors.)

We were told it cost $896.00 just to see Jimmy at the Canadian E.R. and anything they do there was an additional charge. Haven't received the bill yet. Hopefully our insurance will cover most of it. That is about the total of the MRI cost in the US. I like the medical attention we received in the US better than in Canada.

Jimmy at BC Children's Hospital Canada. We got to see first hand the way socialized medicine is practiced with our neighbors up north. Yes, those are diapers on his hands. If they were going to draw blood, they wanted warm (swollen) veins. They didn't have heat packs like they use in our hospital here.

About cost:
After Jimmy's third brain surgery we received a bill from Jimmy's neurosurgeon for an office visit and his surgery: the office visit was billed at $150.00 and we were with the doctor for about an hour, the surgery was billed at $8,000.00 per hour! Lets see... that is $7,850.00 per hour more for surgery than an office visit. Not that I am complaining! This is a top neurosurgeon that saved Jimmy's life and he was well worth the money. I would gladly pay $16,000. 00 for his surgery, however the insurance company paid it. When we saw the neurosurgeon a week later I jokingly said I knew how he made his money and mentioned the bill. He told me he actually makes the same amount of money rather he is in surgery or in the office, the difference in cost was malpractice insurance. Let's see that one 2 hour surgery cost about $15,700.00 for malpractice insurance, that cost was passed on to all of us insurance policy holders through higher rates. Yes, I really do think there needs to be some reform in our malpractice lawsuits.

hitting the big 50!

I just hit 50! What? I don't look a day over 45? Well that because I'm not even 44 yet. Just how old do you think I am??

I was talking about my weight. I have lost over 50 pounds. The numbers look good on paper but, I still don't feel any different, just less embarrassed by myself. I have gone from repulsive to average. But still 50 is a pretty good milestone don't you think?

That's what you get when you send a blind kid to camp

Jimmy went to camp Hobe last week and he had an absolute great time, he left very sad because it is his last year to go to Camp Hobe. When we got home and unpacked we found his suitcase was very full of very dirty clothes, unfortunately they were not HIS dirty clothes: there was a blanket, 3 pairs of pants, three shirts, a jacket and a pair of shoes. He was missing about the same amount of stuff. I know that Jimmy is inclined to losing things because of his bad vision so I made sure to write his name on all his stuff so hopefully he will get it back. Unfortunately there were no names on the orphaned clothes he brought home. We took them back to camp and hopefully they will find a home.

All in all Jimmy bringing home the wrong clothes was not totally unexpected, after all he is a legally blind 8 year old but, I wonder what was the other kids excuse was?

I'd rather wear a macaroni necklace than pearls

Fragrant Memory 8x10 watercolor

I'd rather wear a macaroni necklace than pearls. A woman who proudly wears a necklace made of macaroni makes a bold fashion statement, a macaroni necklace says a lot about a woman. It says I am a mother, a child loves me enough to make me this necklace themselves, and I love them enough to wear it. I have proudly worn macaroni necklaces more than once. My children are now past the macaroni necklace stage. They are doing that dreadful thing all children do, they are growing up. I do still get other beloved handmade gifts from my children, This Mothers day I got a home made story book and a flower pen, my oldest boys bought me wonderful gifts, and my mothers day breakfast in bed was actually delicious this year. I am enjoying my sons gifts but, I'll still look forward to the day when hopefully, I'll have the chance to wear a necklace made by a beloved grandchild. Until then I'll be a little envious of any woman I see wearing a multicolored macaroni necklace.

The Wrath of an 8 Year-Old

Jimmy was mad at me this morning so he stepped on every crack he could while I was walking him to school. I of course, yelled out *OUCH* and grabbed my back with every crack he stepped on. By the time we got to school we were both laughing and Jimmy had decided that just the cracks that ran right to left would hurt my back, cracks running front to back made my back feel good so he could repair my poor broken back.

It was one of those mornings that makes me glad that I'm a mom.

My boy is a Star

My 15 year old son is the star of his Jr. high school play...

He did such a good job. He was in the play "Annie" he played the part of Sandy, Annie's dog. He really is a very good actor in all the plays he has been in he has always had a major role. I was very surprised when they cast him as the DOG! The boys who were cast as "Rooster" and "Daddy Warbucks" rubbed it in quite a bit. I believe he was a little insulted but, he decided he was willing do do the part. I thought that was very impressive, especially because he also took the risk of being ridiculed by the students at school for playing the part of a dog. But he did it wholeheartedly and he did a wonderful job. He received several compliments, several even told him he stole the show!, and he really enjoyed doing it. I am very proud of how well he acted and sang, yes they did have him sing a little, and I am proud of him for doing it at all.

My 15 year old son is the star of his Jr. high school play...
In my opinion anyway.

My son gets the bird

My oldest son just "got the bird".

He has known since he was a little tike that he would not get his drivers licence until he got his Eagle Scout award. He is well past his 17th birthday, he has had his Eagle Scout project completed for over a year, he just had some forms to fill out and turn in.

He finally did it! he is, as of Sunday, an Eagle Scout.

He still does not have his drivers licence, it turns out that he does not want his drivers licence. He does not want to pay for gas and insurance. I informed him that as of June 1st I will not drive him around anymore. I understand how he feels. I never wanted a drivers licence either, my Dad had to trick me into getting my drivers licence. Nonetheless I am very proud to be an Eagle mom. I thought I might never be the mom of an Eagle Scout. Now I need one of those" proud mom of an Eagle Scout" bumper Stickers.

Now I need to get my 15 year old to "get a life"

Mindstorms competition

On Friday, my 17 year old and two school mates entered the ITT 2009 Mindstorm Robotics competition. My son’s team entered the “King of the hole” contest. They built and programed a robot to find and drop 15 randomly placed paper cups into a hole in the center of 10 foot round arena, without the robot the robot falling into the hole. Out of 25 teams from 3 different School districts, my son's team took 1st place! Each team got three tries to get the robot to drop the cups in a three minute time limit, they did it every time. No other team even dropped all of the cups!

The team had to build the robot and program its moves. Once started, the robot ran on its own, no remote control. It has 2 light sensors to detect the hole, and two ‘push’ sensors to see if the robot runs into a wall.

My son said, “The other two guys built the robot, but I programmed it.” He was even interviewed for the news. Of course they did not use that footage. But they did use lots of video of his robot.

They had 2 weeks to work on it, and their School, Jordan Academy of Technology, pretty much swept the competition and took top honors.

Photo Tag

I got photo tagged by Angel, I think she is trying to make me look bad in comparison to her. (Little does she know, she is so pretty anyone looks bad in comparison to her) She does not think I have the courage to show my face in public.

I haven't seen this tag before....and since it's been a while since I've done a tag, I thought I'd play along.

Here are the rules:
Take a picture of yourself right now.
No primping or preparing.
Just snap a picture.
Load the picture onto your blog.

No primping? I picture of me right now? *gulp* here goes...

good thing my camera is right here on my desk.

here I am in all my makeup-less, scruffy paint clothes, sleep deprived glory.

Oh wait! it said "no primping", It never said "no photoshoping"...

so here I am after a little photoshoping, you know, just softening wrinkles, adding a little color etc.

I don't look all that bad after all.

Lessons from an Easter egg hunt

"Winners Never Quit" Detail 11x14 acrylic

Busy, busy, Easter. The Kids had spring break starting Thursday and went back to school today.

We went to a improv show and an Easter party, flew kites, tore down a fence, built a chicken coop, (with the lumber from the fence), added insulation to the attic, and started painting the living room. I was so busy I kind of forgot about Easter. I had just finished picking my 17 year old from work late Saturday night when I realized that I didn't have any Easter grass for the baskets. Too tired and too late to go to the store, so the Easter bunny put out the Easter baskets "naked" with out any Easter grass. It worked great! none of the kids even noticed, and I had no Easter grass to clean up before company came for dinner.

We went to an Easter egg hunt Saturday, they had the Easter bunny there. I always worry about Jimmy in these Easter egg hunts. They had him in the age group that was 8 and up, he is just barely 8 and visually impaired. I know if I asked them to they would put him in a younger group or let me help him, but I don't want him to think he should get "special treatment" so I didn't say anything. He went on the hunt with the other kids, he did not see when the egg hunt started so he was a little behind the other kids and of course he could not see many of the eggs and passed them by. He found less than half the eggs that any of the other kids had. He was looking in his Easter basket and ran over to the Easter bunny with an angry look on his face. I ran after him , afraid of what he might say. As I got there I could hear him say "You didn't hide the eggs very well, look how many I found and I am blind." That made the Easter Bunny laugh, which he thought was cool because Bunnys aren't supposed to talk. I was impressed because I thought he was going to complain about his lack of eggs, instead he was proud of himself for finding so many eggs without help. I saw the glass as half-empty he saw it as full. The kid is always teaching me lessons.

Getting my kid to sing

I am always telling my fifteen year old he has a fabulous singing voice, he seems to think I am only saying that because I'm his mom, I have been trying to convince him that I am saying it because it is true, but to no avail.



Last weekend was the cornerstone dedication of the Draper Temple. My fifteen year old was invited to sing with the youth choir way back in December and they have been practicing for it for every Sunday evening in preparation for this event. It was a great honor for him to be asked to sing, only 5 people from our stake were asked to sing. It was a once in a lifetime opportunity. They sang beautifully, It was absolutely fabulous! They sounded like a professional singing group or better. He was also asked to sing a duet at Jimmy's baptism and upon hearing him sing, the Stake president asked him to sing in a quartet for Stake Conference, and he has been asked to sing a solo in church.



I think he is finally starting to believe me now when I tell him he has a great singing voice.

Jimmy's Baptism

Me and Jimmy

Jimmy got baptized on Saturday, he was so excited! His baptism was the day after his eighth birthday. I asked him if he was more excited for his baptism or his birthday; he said his baptism. I asked him why, after all he gets presents for his birthday, so why is he more excited for his baptism? He told me "A guy has a birthday every year but, you only get baptized once." he was so cute! I am so very glad he is still with us. 3 years ago we did not think he would make it. We are having his birthday party in a couple of days and he wants to invite the entire school , we'll see how it goes...