We had a rough day yesterday, and now I can't sleep.
We had parent teacher conference on Thursday evening where Jimmy's teachers told me he was having severe memory issues since about Christmas. His resource teacher mentioned placing him in another program in another school because they weren't able to help him here. Something like this would have been nice to know earlier. Then on Friday they sent Jimmy home from school because his right eye was hurting a lot. The pain gradually went away. I took him to his pediatrician who could not find anything wrong and called his ophthalmologist's office "is there any change in vision in that eye?" "No, he is still BLIND" Then on Sunday he had 3 seizures. His seizures had gradually been increasing but he has never had three in one day before. On Monday I called his neurologist, his neuropsychologist, and his oncologist. Monday afternoon he came home from school telling me his whole face hurt kind of like his eye was hurting before. After the Doctors all talked amongst themselves for a couple of days. I got a call yesterday morning telling me they wanted to do an MRI today. Jimmy was already in school so I had to check him out during his St. Patrick's Day activities and tell him "we get to go have an MRI." Yeah, he was pretty upset. I brought a drink for him to drink in the car on the way to the hospital (his IVs go better if he is well hydrated) and he had a seizure and spilled the drink all over himself. We got to the hospital and waited 30 minutes for the IV team to get there and it took 4 tries another 45 minutes of poking around in his veins to get the IV in, not fun. By then we had missed his time slot on the MRI machine we had an appointment for, it was either come back later or use the other machine. So we used the other machine. The radiologist has asked us in the past to always use the same machine for him, so we hope he will be able to read them alright. Of course by the time we got his MRI done the radiologist had gone home so we will have to wait for the morning to find out if his brain tumor is back.
So now I can't sleep.
Thursday, March 18, 2010
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2 comments:
I am so sorry. The waiting can be unbearable! I will pray for peace for you until you hear something.
Take Care,
Amy (HopeKids)
Melody, I am sorry that you are playing the waiting game...it's no fun. What an ordeal...I don't understand why Jimmy's teachers are waiting until PT conf. to let you know of Jimmy's progress. They should be updating his progress weekly or however often his IEP outlines it. Grrrrrrr.... that burns me. Sorry. I hope that they will fully involve you in any placement changes. Remember, you have more than 50% of the vote when it comes to Jimmy's educational placement. Email me anytime if you have any questions~
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