Thursday, December 1, 2011

Decisions, Decisions...

We get to make a really tough decision tomorrow. Not one I'm looking forward to . We need to decide weather or not to have Jim go through 2 more brain surgeries that would hopefully make his seizures stop. *ugh* how do you make a decision like that, how much input do you let the kid have? His other brain surgeries he was too young to really understand and the decisions were no brainers, (no pun intended) he was 4 and it was either surgery or die. Now Jim is back up to 2 or 3 seizures a day, he was having 6-12 a day this summer so three seems pretty small in comparison. In fact it seems downright minor compared to what he has been through, unfortunately the seizures seem to be increasing again even though we have been increasing his medication. So if he says he'd rather have the seizures than the surgery do I let him have the final word? Is 10 years old too young to make that decision? If he really wants to not have surgery and we think it best do we force him to do it?


1 comment:

Janet said...

Sorry I'm late with this. I hope everything went as well as possible. Luke was dx at age 9 and is 12 now. The decisions and questions are much much harder now and I'm bracing for the time he says NO.
I wish you peace with your decisions. Know they are made with love.
With hope and peace,
Janet