Jimmy has seizures, lots of them, all the time. It's one of the many fun side effects of having a brain tumor and brain radiation treatments. (radiation, the gift that keeps on giving) He has been having between 4-8 seizures a day. We have been trying every medication in the book to try to stop the seizures he is currently on 3 different medications for his seizures. He is also going through precocious puberty and the doctors think the increase in hormones may be contributing to the seizures, so now Jimmy will be taking Lupron injections to stop the puberty.
A few weeks ago Jimmy started a new medication to try to stop his seizures. the day after he started the medication he also began complaining of a tummy ache, so he has been throwing up every other day for a couple of weeks, he even felt too sick to go trick-or-treating. At first I thought he had a stomach bug but three weeks later he is still sick. So now I am thinking it is his new medication. However his seizures have also decreased to only 2 a day; So would he rather feel sick all the time or have seizures? Ugg.
Jimmy is scheduled to stay in the hospital for 4 days do a VEEG to see if they might be able to do surgery and remove the part of his brain that is causing the seizures. So do I hope they can do surgery and remove part of his brain or do I hope thay say that they can't?
2 comments:
I'm so sorry you and Jimmy are going through this! Seizures are no fun. Throwing up almost daily is no fun, either. I think all you can do is hope and pray for the best outcome...
I miss this darling boy! And miss your family...Tell Jimmy hello, hope you can figure something out!
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